There is nothing wrong with him

There is nothing wrong with him....  Originally posted/written February 20, 2011

There is nothing wrong with him is becoming very common to hear from the school. It sickens me and makes me cringe every time I hear it. I don't understand why it is such a fight to give my child the services he needs. He has multiple diagnosis and is heavily medicated. 

At birth I knew that something was different about my child. He never was happy all he did was scream. He never wanted to be held or comforted or even touched. At about 3-6 months old he would get so mad that he started to bang his head and hit things and himself. I was the only one that he wanted and that could semi comfort him. He was just such an unhappy little boy. Some of the fits that he would throw were unbelievable. He also never slept. I was exhausted from never getting any sleep. All Cody wanted to do was eat and then he would throw up. He never kept much of anything down, so he was then hungry all the time. Thus began my journey of getting help for my son. 

At 15 months old he was evaluated by Easter Seals and began services immediately. Cody had OT (occupational therapy), Behavior therapy, and Developmental therapy. This went on 4 days a week until he turned 3 years old. It was very hard to sit in on Cody's therapy daily and see how bad he would fight the therapist. He was miserable, touching him and forcing him to touch items he didn't want to were grueling for him. (Play-doh, water, shaving cream, lotion being rubbed on his arms). 


How anyone can think and say that there is nothing wrong with Cody by looking at all his reports and therapy that he has done is unbelivable to me. 


Cody started seeing a psycologist and taking medication at 3 years old. I was out of options for him he was hurting himself and me. I was very leary about putting him on medication, but felt that it was the best choice for him. It took some time getting him regulated, but improvments came fast. He started to sleep it was great. He contnued therapy and started an early childhood program at the school district we were in. He did very well there had pull out sessions for sensory and behavior managment. 


By the time kindergarten rolled around he was able to come out of special ed and go into a regular education class. Although he was making impovments at school services continued to be in place for him.


I decided to take him to Children's Memorial Hospital to have a second opinion and check on the medications he was on. I was lucky enough to get him an appointment with a world renowned Dr that had been on Oprah. She is a wonderful Dr. with a year waiting list. She saw him and evaluated him on 4 different occasions. When she was done her recomendations were exactly what his Dr. at home was doing for treatment for him. She said that her diagnosis were the same and wouldn't treat him any differently. That really made me feel good, and set my mind at ease on the medications.


The stress of the move begins!